This page contains information and engagement tools with the community, as we gather more data about kids and youth with epilepsy and their mental health challenges.
ONLINE SURVEYS
We will post all daily links to our quick surveys we are conducting online to gather data about mental health challenges in kids and youth (ages 12-18) with epilepsy.
Each link is dated from the post we published on social media. Responses are anonymous.
- DECEMBER 17
When was your child diagnosed with epilepsy?
Life after diagnosis feels… - DECEMBER 18
Has epilepsy affected your child’s emotions?
What shows up most for your child?
Has caregiving affected your mental health? - DECEMBER 19
Has epilepsy affected your child’s friendships?
Does your child feel supported at school?
Have you faced stigma or misunderstandings about epilepsy? - DECEMBER 20
What support has helped your child the most?
What support do you wish existed but doesn’t?
Do you feel comfortable talking to professionals about epilepsy & mental health? - DECEMBER 21
Has epilepsy changed your family’s daily routine?
What support do you need most as a caregiver? DECEMBER 22
What should an ideal support program include?
What gives you hope on hard days?
